Oh my goodness how bad am I at updating!

For goodness sake, if I was getting paid for this I would surely get the sack; but fortunatly I'm not so there shouldn't be a problem.

Since my last posting some amazing and wonderful things have happened to me, first off I had my blood transfusion last week so now I'm really starting to feel better- my leg spasms have reduced quite a lot already so I'm very pleased. That's one of the worse things about my MS it really wouldn't be so bad if it weren't for that and needing a transfusion seems to affect it adversely.

The next wonderful thing is that the charity 'The willow foundation' have arranged for me and sam to go to an exclusive gig of The Red Hot Chili Peppers!!!!! I still can't believe it, it will be like a dream come true, it's at a place called the Roundhouse in London, which is tiny! (tiny is gooood as far as concerts are concerned) According to the charity a limo will pick us, and my friend Tina, up and get us home. It's going to be FANTASTIC; we can't wait. Oh & it's this Wednesday by the way. YYYYiiiiiiiipppppppppppppppeeeeeeeeeeeeee!

Just in case I get to meet them I'm going to take one of my false boobs with me to get signed (I don't wear them anyway and thought they may as well be used to make sure the band don't forget me!!!! ;-))

Jen x

Right soooooooo.....

Didn't have the operation, wasted a whole day starving myself then the staff decided that being as my haemoglobin was only 10 something a month ago they better wait to get it checked again before surgery. Then decided my 'gag reflex' had deteriorated since my last op (I can stick my fingers right down my throat and not heave-great party piece!) I would need to have some tablets an hour before surgery.

Anyway went to have the iron levels checked again on Thursday and 'quell suprise' they have now gone down to 9 something; no wonder I feel so rough! So now I'm trying to sort out having a transfusion this week coming.

NOW FOR THE MAJOR BIT

Heard from my MP this week as she sent me a copy of the reply she got from the Prime Minister regarding our question.......

Guess what! He doesn't answer it, goes on trying to blind us with facts and figures about how well the Government has done over the years but forgets to mention that they haven't lived up to the promises they themselves made in the white paper they published in 2003 about waiting times for genetic test results, so when I feel better looks like we have a bit of a scrap on our hands; joyfulness.

That's all for now folks, bed beckons

Love

Jen x