I think this fantastic Red Hot Chili Pepper song is quite apt.... don't you!
Enjoy!
Jen x
Sunday, February 25, 2007
Tuesday, February 20, 2007
Decisions, friends and Chili's!
Right at last decision made!... I'm going to be starting a new (to me anyway) MS drug called Copaxone in the very near future.... yay.... NOT
For a multitude of reasons, discussed with my fantastic MS nurse specialist Pauline, have decided the best drug for me at this point is the one that involves DAILY (yes DAILY!) injections... just the sort of thing a needle phobic needs!
Apparently I can use an 'auto-injector' this time though and the needle is only little. The only side effect I might suffer with is a tightening of the chest and feeling of not being able to breathe for 15 minutes just after the injection... oh that's all right then! Piece of cake...never did like breathing much anyway.
On a lighter and much more pleasant note I went to the Brit awards last week! Was brill, especially as the Chili Peppers were there too and saw a fantastic performance of Dani California by the band and got very tired through screaming and dancing to them, ok I'm biased but they really were the best performance of the night.
Another highlight for me was my friend Kay came too; she is a fellow Chili fanatic and we had such a laugh! The bitch is younger and prettier than me but- generous soul that I am- I forgive her lol she is such a great friend to have. (love you loads Kay x)
Now all I have to do is get me some tickets to this 'live earth' thingy and I'll be an even happier bunny..

For a multitude of reasons, discussed with my fantastic MS nurse specialist Pauline, have decided the best drug for me at this point is the one that involves DAILY (yes DAILY!) injections... just the sort of thing a needle phobic needs!
Apparently I can use an 'auto-injector' this time though and the needle is only little. The only side effect I might suffer with is a tightening of the chest and feeling of not being able to breathe for 15 minutes just after the injection... oh that's all right then! Piece of cake...never did like breathing much anyway.
On a lighter and much more pleasant note I went to the Brit awards last week! Was brill, especially as the Chili Peppers were there too and saw a fantastic performance of Dani California by the band and got very tired through screaming and dancing to them, ok I'm biased but they really were the best performance of the night.
Another highlight for me was my friend Kay came too; she is a fellow Chili fanatic and we had such a laugh! The bitch is younger and prettier than me but- generous soul that I am- I forgive her lol she is such a great friend to have. (love you loads Kay x)
Now all I have to do is get me some tickets to this 'live earth' thingy and I'll be an even happier bunny..

This is me outside Earls Court at the Brit's
(Ok I should have worn something different!!!)
Jen x
Thursday, February 01, 2007
If it's not one thing tis the other...
So have had a clear scan result which means I am officially officially in remission now (I say it like that because I don't think I actually believed it before) So the check up schedule now, for the time being, is 3 monthly for a while then on to twice yearly then annual.... cool! So can put that right to the back of my mind in a suitcase with a padlock, which is what I'm now trying to accomplish, just one more little hurdle to overcome; which is to have the device in my chest that gave direct access to my veins, instead of them hunting around in my poor arm for one, surgically removed. This means a short hospital stay in my case due to the MS but it shouldn't be too traumatic I don't think. Mind you there won't be any TV camera's around this time.... gosh do they not know who I am ;)
So this is one door closing.... but in my typical style the 'other one opening' isn't all that easy either! Now I actually have to start thinking about the MS again, do I want to go back on my weekly injections?...... NO.... totally needle phobic now, so not fancying that much! Do I want to start on smaller every other day injections...... NO..... still needle phobic! Or do I want to go on a trial for a new oral medication that in earlier trials had a very impressive success rate in reducing the amount of flair ups for the MS patients taking part?... YES... well you probably can't because of your cancer history..... flippin eck! My MS nurse specialist is looking into it for me but I'm not holding my breath....
Did somebody mention tapestries....?
Take care
Jen x
So this is one door closing.... but in my typical style the 'other one opening' isn't all that easy either! Now I actually have to start thinking about the MS again, do I want to go back on my weekly injections?...... NO.... totally needle phobic now, so not fancying that much! Do I want to start on smaller every other day injections...... NO..... still needle phobic! Or do I want to go on a trial for a new oral medication that in earlier trials had a very impressive success rate in reducing the amount of flair ups for the MS patients taking part?... YES... well you probably can't because of your cancer history..... flippin eck! My MS nurse specialist is looking into it for me but I'm not holding my breath....
Did somebody mention tapestries....?
Take care
Jen x
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