Right- have been having a bit of a rough time with the new medication.
The injection itself is easy peasy now have no problems.... until about 30 seconds later and then feel like I've been stung by the fattest wasp in the history of fat wasps from waspville (and I'm allergic to wasp stings)
It just seems a bit mad to me, the drug is supposed to set up an allergic reaction; well that's one of the known side effects anyway, surely that's not a good thing?? (well not in someone who's allergic to things like bee stings? I'm even allergic to plasters and any jewellery that isn't precious metal) I suppose it should have been me that thought about that before I started on the treatment but I just hoped it wouldn't be too bad in my case... should have known! Nothings ever simple in Jen's world! I have great angry red itchy marks and lumps wherever I've injected and it seems that every time I inject it makes the previous sites flare up again! I would just like to point out though that this doesn't happen to everyone and that some people swear by Copaxone® and it does them the world of good, but it isn't for me at this point.
So I've chickened out of doing the jabs for the past couple of days (I just did one today though) and on Monday, when my Nurse specialist gets back from annual leave, I'll try to sort out going back on to beta-interferon. It'll mean a weekly intramuscular injection but at least it's only once a week- with no injection sites reactions. Hopefully I'll even be able to get the nurse at my GP surgery or a district nurse to do it for me... we'll have to see.
Anyway rant over for now... until I think of something else to write :-)
Love
Jen x
Friday, March 30, 2007
Thursday, March 22, 2007
Sunday, March 18, 2007
Mothers day....
Well at first this morning when I woke up it was the usual set-up for mothers day in my household... ie;- whatever you do don't mention it, don't get me a card, no pressie, no flowers and whatever you do try not to think about mum's in general, and me ranting on about how commercial it all is now and how I didn't want Sam wasting his money on me anyway....
Then I got a pertinent message from one of my many dear friends to say that she knew how sad today was going to be for me but to remember that I also have a lot to be thankful for; not least of which is that I'm still here to be with my Sam. It reminded me that I'm being selfish by not allowing Sam to shower me with gifts ha- ha, no but seriously it reminded me that yes I do have an awful lot to be thankful for.
My son is growing up into a very special young man and is someone to be very proud of. Last night he gave me a huge Toblerone and said it was instead of giving it to me today... it was his ''day before the day we don't want to mention present'' He knows how much today hurts me since I lost my mum and has just been lovely all day... I never was one to mind having extra cuddles whatever the excuse. He really is an exceptional 15 year old.
I've got some other news to share with you all at some point too but better check with the person concerned before I do.... yet another part of life's rich tapestry :)
wooo and hooo
love
Jen x
Then I got a pertinent message from one of my many dear friends to say that she knew how sad today was going to be for me but to remember that I also have a lot to be thankful for; not least of which is that I'm still here to be with my Sam. It reminded me that I'm being selfish by not allowing Sam to shower me with gifts ha- ha, no but seriously it reminded me that yes I do have an awful lot to be thankful for.
My son is growing up into a very special young man and is someone to be very proud of. Last night he gave me a huge Toblerone and said it was instead of giving it to me today... it was his ''day before the day we don't want to mention present'' He knows how much today hurts me since I lost my mum and has just been lovely all day... I never was one to mind having extra cuddles whatever the excuse. He really is an exceptional 15 year old.
I've got some other news to share with you all at some point too but better check with the person concerned before I do.... yet another part of life's rich tapestry :)
wooo and hooo
love
Jen x
Thursday, March 15, 2007
Flippin eck!!!!!!!!!!
But the bigger news than that (which I forgot to post in my last message! blame my chemo brain) is that I have just set up a new team to take part in the Breakthrough breast cancer charity walk again this year!!!!!!!!!!
I am sooooo excited about it! There are already about 8 of us on my team and these friends of mine have made me so happy, I've been really touched by their generosity. Love you all
The teams name is THE FLAT ONES and I'm sure I'll be filling you all in with more news as things develop.
Anyway am very excited but my lovely dad has just arrived to visit so I'll be off now, but just before I go let me just say one more thing......YAY!!!!!!!!!!!!!!!!!!
love
Jen xxxxx
I am sooooo excited about it! There are already about 8 of us on my team and these friends of mine have made me so happy, I've been really touched by their generosity. Love you all
The teams name is THE FLAT ONES and I'm sure I'll be filling you all in with more news as things develop.
Anyway am very excited but my lovely dad has just arrived to visit so I'll be off now, but just before I go let me just say one more thing......YAY!!!!!!!!!!!!!!!!!!
love
Jen xxxxx
Woooooo hoooooooooooooo
Just a quick post to say that I've just had my first injection of my new treatment for the MS! I'm very proud of myself because I've become quite needle phobic since all the cancer treatment and I had to learn how to do the injection myself and REALLY wasn't looking forward to it!!
But job done and hopefully now I've done the first one it'll be easier tomorrow :)
The only side effect so far is a quite strong stinging on the injection site but I've coped with worse.
Anyway just wanted to share.
love
Jen x
But job done and hopefully now I've done the first one it'll be easier tomorrow :)
The only side effect so far is a quite strong stinging on the injection site but I've coped with worse.
Anyway just wanted to share.
love
Jen x
Friday, March 02, 2007
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